Well, Chris handled the step back really well and is over that hump. He did well with the test, they got his lung clear and the chest x-ray looks much better. He is off of Bi-Pap and back on the nasal cannula. Dr. McGoon, from the Pulmonary Hypertension Clinic, was called in. He said Chris could come off of the Bi-Pap. He has also sent an order to begin weaning Chris from the Flolan-Chris is just thrilled and hope it works-he would so love to be rid of the infusion pump. When I left Chris a few moments ago he was getting ready to eat a bowl of cereal-he is no longer nauseous and very hungry. They will probably wait until Monday to put the AICD in. It was a rocky start for a day but it is headed for a smoothing ending. Take Care. MJ
Evening update-As I left Chris for the night-he was watching a DVD -the Best of Johnny Carson- and having many good laughs. He is sooo much better than yesterday and this morning (yesterday was a really good day) He is talking about getting home sometime soon and even talking about doing some fund raising for the Pulmonary Hypertension Association and for the Adult Congenital Heart Association. The reality that he is going to feel better when this is all said and done is finally setting in. What a wonderful day it has been. Mary Jo
3 comments:
What a great end to a day you all have had. I hope this is that turn in the road that leads the way home. I can't wait to hear more great news from you all. Keep the Faith!!!! As always, in our thoughts and prayers.
I was so glad to get the evening update.
Chris and Mary Jo and Carolyn,
my prayers are with you as this week ends and next begins. What a wonderful Thanksgiving for all of us and for us who have had you in our prayers.
I am off to school----in the dark!
Love,
Carmen Ann
Amazing how a setback turned into a good day. We are so happy that Chris continues to progress. Hopefully things will move quickly from here & you all will get home before you know it. We continue to think about you often & send prayers & good thoughts up to Rochester.
Meg
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